Patient Centricity

The 8th International Conference on Patient- and Family-Centered Care: Promoting Health Equity and Reducing Disparities will be held in Baltimore, USA from June 11-13, 2018 with leadership support from Johns Hopkins Medicine.  For the program go here.

Join a new Musculoskeletal Consumer and Community Advisory Group

We are seeking applications from suitably experienced individuals who are interested in becoming a Consumer Partner to help us reduce the burden of Musculoskeletal (MSK) disease in the community. You will be working with clinicians and researchers on important projects across South Western and South Eastern Sydney Local Health Districts, Sydney Children’s Hospital Network, and St Vincent's Hospital, Sydney.

You will become a Consumer Partner of an advisory group which will guide the work of the Sydney Translational Research and Education Alliance for Musculoskeletal Health (STREAM Health) committee and working groups in the areas of Osteoarthritis, Osteoporosis and Back Pain.

Previous experience in health research is NOT required to be a part of our ambitious team. The advisory group will meet quarterly, and you will have the opportunity to participate in individual research projects and initiatives.  If you are interested, please contact Mrs Sarah Fares for more information, Project Officer of SPHERE on 0451 131 514 or email your application This email address is being protected from spambots. You need JavaScript enabled to view it..

Dragon Whispers and Conversations

A new menu item has been added under Here To Help.  Have a look and enjoy.



The Patient Revolution is, at its heart, a movement based on stories. This website and publication tries to arm people to tell stories; stories about their lives, stories about their capabilities and limitations, and stories about what risks, benefits and trade-offs look like from their point of view.  In a series of brief and personal essays, Why We Revolt describes what is wrong with industrial healthcare, how it has corrupted its mission, and how it has stopped caring. Dragon Claw is about patient centricity and self help so we thought this publication may be of interest to some members and visitors. Subscribe here 

The Dragon Invited to be Part of A3BC

Despite major medical advances in treatment, not all people respond, many develop significant side effects, and there remain no cure or prevention for arthritis and musculoskeletal (MSK) conditions. The Australian Arthritis and Autoimmune Collaborative (A3BC) was formed in 2016 by leading Rheumatology clinicians and scientists from over 40 sites across Australia to enable world-class translational research. The A3BC vision is to give the right treatment at the right time for the best possible outcomes in children and adults with arthritis/MSK conditions across their lifespan and, ultimately, to find a cure.

We are very proud to be part of this initiative and as things develop will keep members informed.


Don't miss our extensive video collection under the main menu - Video Library.  The content covers everything from gut bugs to hand exercises.  New videos are added monthly.


ARAD is a national Australian database which collects important health information from individuals with inflammatory arthritis. If you would like to participate in the survey Go Here and look for ARAD bottom left.


OMERACT - Outcome Measures in Rheumatology - will be holding it world conference in Terrigal, NSW in 2018.

Quick Reads

Want to learn about your condition but can't read scientific articles?  No problem.  Dragon Claw provides short simple summaries of some of the best and makes them available just for you the Member under the sub-menu item Quick Reads.

Street Art

As you move through the site and its many sections you will notice unusual art works, usually at the top of each main section.  More will be added as time goes by.  These images are street art from Sydney, Australia.  We are using these images (with permission) to make the site distinctive and memorable. We particularly wanted to move away from clinical images and happy smiling faces which are so routine these days.  Hope you like the images.

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